Happy New Year!

While the rest of the world celebrates New Year's Eve, my husband and I will be celebrating our wedding anniversary.  This year is definitely more special, as our gift to each other is my life. 

So today represents the end of a difficult year, but a year that has been full of blessings.

It represents a deep love of husband and wife.  We are still as mushy, romantic as ever .... he still opens the car door for me.
 
And, the fact that I'm a cancer survivor.  I am still wrapping my brain around that one.  The anvil is still over my head and it will probably take time for that feeling to subside.

I don't think that my life will now be a bed of roses, but I sure have learned a lot about myself and the people that are in my circle.  Most of all, I have learned so much about what faith really means in our broken world. 

Last year, I had made a new year's resolution of de-cluttering.  Thanks to my daughter and husband, they were key in making this happen.  Now, it seems that I want a more substantial proclamation.  I have been praying about it and I'm close to putting it into words.

Until then, my friends, may this day be safe, happy, fun, light-hearted, loving, inspired, and may you find many blessings in the new year to come!

Celebrating the Holidays Despite a Cancer Diagnosis

It is my pleasure to post this message

from a husband and wife who wanted to share

their experience with you ~

By: Cameron Von St James

My wife gave birth to our only child, Lily, in August of 2005. We were already looking forward to the joy that the winter holidays would bring. I have always looked forward to the opportunity to spend the holidays celebrating with the ones I love. I have always been thankful for being blessed with so many amazing people in my life. Heather and I had already started talking about the holiday traditions we wanted to pass on to our little one, and the new ones we would start as a family.

Unfortunately, our holiday spirit and excitement were stamped out just three days before Thanksgiving, when Heather was diagnosed with cancer. Our daughter was less than four months old at the time of the diagnosis. We learned that Heather had malignant pleural mesothelioma, and in an instant our focus shifted from turkey and holiday shopping to fighting a rare and very deadly form of cancer.

I was filled with anger and fear after the diagnosis. Everything that had seemed so positive, everything I seemed so sure about disappeared in an instant. I tried my best to remain positive and hopeful, but my mind went straight to fearing for the worst. I had thoughts of losing my wife and growing old as a single father. I felt that I had little to be thankful for that year.

Despite the horrible news, we did have a Thanksgiving and Christmas celebration with my wife’s family. The family discussed all the ways they would support us in this trying time.  I had been dreading this discussion for days.  We talked about money and childcare. Heather and I had previously both been working, but we were now reduced to living on my income alone, and the diagnosis brought with it a wealth of unexpected expenses that we were not equipped to handle.  Heather’s parents went through our finances with us and helped us figure out what we could liquidate to stay afloat, as well as what they could afford to help us pay for.  I was mortified and embarrassed, and once again I felt that I had nothing to be thankful for. It would be years before I could look back on that day with anything but shame.

Now, however, I can see how very mistaken I was to look at it that way.  Looking back, I can see how truly blessed we were to have such a strong and loving family supporting us through our tough time.  My pride and my fear blinded me to that at the time, but now I can see how very much I had to be thankful for that season.

This holiday season, I will not let go of that memory of our family gathered around, communicating and helping each other. I will keep in mind everything that I have to be thankful for. I have more than many people will ever have; I am surrounded by kindness, love and good friends. Lily is healthy and as usual, this year will revolve around surrounding her with fun holiday traditions.

In the end, with the love and support of our incredible community of friends and family, Heather beat her mesothelioma. She beat all the odds stacked against her, and we have celebrated numerous holidays together since her diagnoses. We are looking forward to many more together in the future.  We hope that our story of success can help all those currently fighting cancer find something in their lives to be thankful for this holiday season.

Husband of Mesothelioma Survivor Heather Von St. James
Read more:  
http://www.mesothelioma.com/blog/authors/cameron/

Christmas Eve

 

Christmas Eve ~ a special night

Candlelight service at 8pm with special music, sermon and communion.

The reason for the season

Sunday service was special as the children and choir presented a Christmas play.  They did a fabulous, fabulous job.  I wish we can do an encore!

Here is a picture of the manger (none of the children, not on public web)

 

May this Christmas bring blessings and deep peace to you and yours!

Prayer

I created a form on my blog for folks who would like me to pray for them. 

 

I'm a prayer warrior!

If you would like me to pray for you, just click on the image on my side bar, or you can click on the praying hands below.

Once you click on the praying hands, it brings up this form:

Your message comes directly to my e-mail.  Your request is private and I do not put it on my blog, or facebook etc.  I ask for your e-mail so I can type out my prayer and send it directly to you. 

For me, prayer is powerful. Prayer is a way to talk to our Father and to bring our praise, our worship and our burdens to Him.

I received so many prayers from others and would be honored to do the same for you.

And I do it in Jesus' name ~

Day after Port Removal

Well, guess I will get back on that Coumadin until I see doc Jan 15.

Ouch!

One Year Anniversary

Dec 20, 2011 was my lumpectomy surgery. It almost feels like a lifetime ago. It is hard to wrap my brain around surgery, 6 rounds of chemo, 33 days of radiation and 17 IVdrips of Herceptin.

Not to mention 3 MRIs, 3 ultrasounds, 1 bone density screening, 2 blood transfusions, 2 echos, hospitalization due to multiple blood clots, followup appointments and just to throw into the mix, a neurologist specialist.

At 8:00am, I was scheduled for my port removal.  The doctor was the same one that had put the port in my arm last January 5.  I had an added bonus of dissolvable stitches, so I won't have to go back and have them pulled and cut out.  The doctor asked if I felt a sharp pain and I said yes ... so she gave a little bit more numbing on the area.  The only other person in the room was a nurse.  The doctor held a conversation with me as she worked and had several questions.  It was a good distraction.

"How did your life change after going through cancer treatment?" she asked.

I have been asked that before.  "I have grown closer to God."

She nodded. "I have heard that before many times from patients."

I explained that my faith has always been strong, but now I got to experience "the peace that passes all understanding" as in

Philippians 4:7

New King James Version (NKJV)

⁷ and the peace of God, which surpasses all understanding, will guard your hearts and minds through Christ Jesus.

~~~~~~~~~~~~~~~

Gentle, deep peace wraps around my whole being and removes any anxiety and worry I held on to all my life.  This peace cannot be explained by mere words, it can only be experienced.

 

Once the port was finally removed, doc stitched me up with dissolvable stitches.  So glad I don't have to go back to get them removed.  No bruising yet. Do you remember the last bruise when it was put in? Oh, yeah, and the "multiple" blood clots it created.

 

 

 

After the procedure, I went back to the lobby waiting room.  This is also the day my mom is getting her kidney biopsied.  I waited for my brother in law to bring her.  The place was getting busy since my early morning appointment.  Filling up with patients, wheelchairs, canes....

 

This broken world filled with broken bodies. 

 

How many with broken spirits?

An Insurance Perk

Saturday, Christie & I went to Elegant Essentials.  What a beautiful shop and gracious staff.  Please check with your insurance carrier on what benefits you may receive when facing breast cancer.  My insurance pays for 6 bras per year.  If you happen to chose one that has more frills than what the insurance company deems necessary, then you pay a portion.  So, I received 5 great fitting bras for free (because I met my deductible) and then paid 50% of the cost for the 6th one.

 

Did I mention 6 per year for life!

 

 

Christmas Flash Mob

In South Bay Galleria (So Cal) – a Christmas flash mob, be sure to watch it to the end the final minute is the best!
 
TAKE THE TIME TO WATCH THIS – IT SAYS IT ALL.
 
THIS IS REALLY WHAT CHRISTMAS IS ABOUT.
 
GOD BLESS US ALL!
 
Click here

Herceptin #17 and The Last One!

Friday, December 14 was my 17th Herceptin drip.  8:00am, I arrived at the clinic and all its familiarity.  The white tree that sits elegantly next to the receptionist window was decorated with beautiful Christmas ornaments.  They have ornaments for each holiday or season .... Easter, St Patrick's day, Halloween, Thanksgiving, Independence Day, etc... In the past 12 months, I have never seen it removed from the room or undecorated. 

I scanned my patient card and settled in my chair.  I decided to stop for coffee before coming in and SO glad I did.  This was the first time I actually made time to do so.  I pulled out my electronic Yahtzee game and watched as the nurses arrived to begin their work day. I wondered if they really knew how special they are to so many of "us". 

Nurse Regina took care of me today.  Nurse Karen was the other one on site and in the same chemo room.  On the other side of the hallway, it was Nurses Tracy, Dawn and Bev. 

All my angels

It was smooth sailing and the nurses reminded me that I will need to get my port flushed every 4-6 weeks.  It is hard to explain, but it gave me comfort knowing that I would get to come back and see them.  Nicole, the pharmacist, stopped by to wish me well and I asked how long I would need to keep the port in. She said that Doc Esther usually kept them in patients for a few months....even up to a year.  She is a new mom and the conversation easily moved to photography and my all time favorite ~ Shutterfly.  I am still planning on creating a piece for display at the center. 

Once the chemo was done, I collected my things and gave hugs to Regina and she led me to the scheduling desk for the port flushing.  I got it for Jan 15 when I come in for my follow-up with Doc.  Karen found me and gave me good-bye hugs as well.  She is special to me. 

My sister will also have these amazing angels to care for her

I decided to go across the hall to find the other nurses and say my good-byes.  Doc Esther was there on the computer and she watched all the exchanges.

Then she said, "Why don't you go see Kim and have her schedule to get the port removed."

"Really!?" I was shocked.  "Really!?" I said a little louder.

"Yes," she said. "I don't want to have to write out any more work orders for you."

Happy Dance!  Laughter! Delightful squeals!

 

So, I made my way down the hall and Kim scheduled it for next Thursday, 20th. Naturally, I turned right around and went back to the chemo scheduling desk to cancel the flushing.  Wow, what a turn of events.

 

As I was driving to work, I was trying to wrap my brain around everything that had just occurred over the past 2 hours.  With the clear results of my one year mammogram/ultrasound , I realized

 

I'm no longer a cancer patient

 

I am a cancer survivor!

 

 

I am one of God's miracles!

 

 

 

 





The Children are Precious

In light of those whose lives shattered in an instant today, I am putting my news on hold for now.

As the water pushes powerfully thru debris

May our prayers push their way thru any obstacle

and reach directly to Heaven

 

The little children who now sits on the lap of Jesus

will never cry again

will never hurt again

 

and will live in the purest light of love

as they wait patiently to see us again

 

May the parents, families and friends

seek God's face

feel His arms around their shoulders

and His comfort deep inside their hearts

 

May we remember them in our prayers

and lift them up in a community of

love and understanding

today and every day

Amen

 

 



Physical Therapy

After work today, I went for my first physical therapy visit.  Hopefully, gently working and stretching will help get the kinks out and return my range of motion and strength.  I will be going every Tuesday & Thursday for at least 4-6 weeks.  I'm really excited about getting to this next step in my journey.

I want my strength back!

I don't want to be so fatigued anymore!

Haven't a clue

Not much to tell this past week.  After Tuesday, my body felt like it had been slammed by a mac truck.  Amazing how stress can mess with the body.  I'm still getting use to taking Arimidex  My blood pressure, headaches and pain got the best of me and I left work early on Thursday and slept through it.  Saturday, I slept a lot too.

I'm hoping that physical therapy will help me get my body moving again. My first visit is Dec 11.

Lots of anniversaries this time of year.  What date do you use?  The day of the mammogram? Day of the biopsy? Day of the diagnosis? Day of the surgery?  What constitutes the one year anniversary of cancer? 

Haven't a clue.

Christmas is around the corner and I haven't begun shopping or writing greeting cards. Christmas is so different without little ones.  As the years have come and gone, the meaning of Christmas has deepened for me and I surround myself with Christian music and listen to the radio programs that I love.

Wishing you all the joys

of this beautiful and peaceful season.

 

 

 

 

Follow Up with Surgeon

This morning I woke up to a migraine ... haven't had one of those in years. They always affect my vision and I knew that I would have problems driving to my appointment.  Matt was ready to take me, but by the time I was to leave, my vision returned.

I arrived at the Breast Center with the feeling of deja vu, I was doing this one year ago.  I wanted to sit with every patient in there and hold their hand. I remembered the anxiety and fear and disbelief.

The nurse updated my information and my blood pressure was 151/111. Kinda high ~

I met with Dr Partin first and she is just so thorough.  A very sweet lady.  She asked me what plans I had to celebrate my last chemo (Dec 14).  I really haven't thought about that. 

The thick tissue at my surgery site is scar tissue.  It should be watched for any time of growth.  She explained that since some of my lymph nodes were removed, my system has been interrupted and this could be why I'm not feeling 100%. The pain in my unaffected breast needs to be checked.  She also wants me to try tailored bras at:

I agree. Time to find something else.  She also asked if I had Fibromyalgia.  Nope.  She is sending me to physical therapy as my range of motion isn't far enough along.  They set me up for Dec 11.  After physical therapy is done, I plan to then go to a gym to continue building my strength.  I am weighing the most I've ever weighed in my life. Time to get these pounds off.

So, down the same hallways I had been through before for the diagnostic mammogram.  It HURT, but I've been through worse.  The technician told me to take a seat and if there was anything unusual, I would be sent to the ultrasound.  Waiting even 5 minutes gave my brain time to think too much.  It also gave me time to pray and just remember what I have already accomplished so far. 

The nurse came back to take me to the ultrasound.  So, with this, my emotions were raw.  Each place the wand touched and then stayed at was right where the pain was .... Her fingers danced across the key pad taking measurements of the areas she paused at.  It didn't take long and she asked me to wait for the doc to review the ultrasound and come in to give me the results. 

Dr. Davis and two other ladies came in .... 3? It must be bad news ....

"You are all clear on both breasts. Nothing at all to worry about."

The waterworks poured out.  I couldn't help it and I was just so relieved.

She took some time with me as I calmed down.

Thank you Lord Jesus for wrapping your arms around me today.  I felt your presence!

The Anvil

So, I guess this is what my one doc was talking about when he said that most cancer patients feel as if an anvil is hanging above their head waiting to drop .... this was describing all the little bumps, lumps and pain we feel and wondering if the cancer is back.

Guess I will find out tomorrow.

 

In the meantime, I'm giving it to God.

Our Beloved Sister

Missing you, Cathy

May 30, 1968 - December 1, 2007

Homesick - Mercy Me

My poem Until We Meet Again

 

 

John 14

New King James Version (NKJV)

The Way, the Truth, and the Life

 

1 “Let not your heart be troubled; you believe in God, believe also in Me.

 

2 In My Father’s house are many mansions; if it were not so, I would have told you. I go to prepare a place for you.

 

3 And if I go and prepare a place for you, I will come again and receive you to Myself; that where I am, there you may be also.

 

4 And where I go you know, and the way you know.”

5 Thomas said to Him, “Lord, we do not know where You are going, and how can we know the way?”

6 Jesus said to him, “I am the way, the truth, and the life. No one comes to the Father except through Me.

 

Ch-Ch-Ch-Changes (a david bowie tune)

Thursday was a milestone for Christie.  Plus it was Casey's last night in Ohio.  So what better way to come together than over a delicious meal.  Christie/Katie and me/Casey met at Bob Evans to hear about Christie's adventure and check out her new look.  It was wonderful to just come together in support for one another.

Katie, Me, Christie, Casey

As we were leaving our table, a woman motioned to Christie and pointed to her own pink ribbon lapel.  (Christie's scarf is certainly a way for folks to recognize a chemo patient)  Her name is Betty and she wanted to give Christie some words of encouragement.  It was certainly a blessing for Christie as she held Betty's hand and they shared with each other their own experience with cancer.  It was an honor for me to witness it, because it just affirmed to me that this journey is certainly a sisterhood.

Christie & Me

My emotions are still all over the place.  It is a mother's delight when we see our children happy and healthy.  Even though I miss Casey, I know that she is exactly where God wants her to be.  Thank goodness for Skype, text, internet and cell phones!

Friday Casey came to work to see some of the people who remember her from when she worked there and to introduce her to other coworkers.  I enjoyed watching my adult child answering the many questions asked of her.  I remember listening to a talk show about how to change your relationship once your children become adults.  It had some really interesting points.  The one I remember the most is "if your friend was going outside, would you say 'you better put your sweater on' ... well, you shouldn't!  and you shouldn't say that to your adult child either."  Food for thought.

Once she left, I prayed over her safety on her flight back to Colorado this afternoon.  (and God honored the prayer)

This week was exhausting and I do believe I'm going to sleep in Saturday!!

Changes to my appointments

My annual mammogram and follow up with my surgeon has been moved up to Dec 4.  Looks like they want to do a diagnostic mammo and ultrasound to check out some pain I've been having.  Also got the all-clear to go to my dentist Dec 4 for my 6 month cleaning.  The coumidin should not be an issue as long as I don't get jabbed by some of those wicked tools they have!



Philippians 4
⁶ Don’t worry about anything; instead, pray about everything. Tell God what you need, and thank him for all he has done. ⁷ Then you will experience God’s peace, which exceeds anything we can understand. His peace will guard your hearts and minds as you live in Christ Jesus. 

Flashback

It is hard to imagine that a year ago my journey began.  Nov 28, I had my annual mammogram. Dec 1, went in for the diagnostic, ultrasound, and biopsy.  The diagnosis was confirmed Dec 7.

 

Where did 2012 go?

Better yet, where was I in 2012?

Chemo Brain

Evidence of 'chemo brain' verified by researchers

By Loren Grush

Published November 27, 2012

FoxNews.com
 

• 

For many cancer patients undergoing chemotherapy, memory problems and a general mental haziness often plague them during and after treatment. The condition – known as‘chemo brain’ – has only been a reported phenomenon, without ever having been fully verified through scientific measures – until now.

Herceptin #16

Guess what I forgot to do? Put numbing cream on my port! Geez, I did that one other time and swore that I would never forget to do that again!  Oh well .... chemo brain.  Nurse Karen is an expert and I dealt with it easily.  After the numerous tests and pokes this past year, what's a little pinch in the arm?

The parking lot was bare as the only ones in the building were the chemo nurses.  I felt bad that they didn't have the day after Thanksgiving off like most folks.  Bless them!

Today was my next-to-the-last-one Herceptin drip.  Yay!!

December 19 is my "annual" mammogram (NOT looking forward to this)
December 21 is my follow-up with the surgeon

Nurse wants me to follow up the Doc about the pain behind my knee and the pea-size bump I feel.  Plus, the intense pain in the lymph node sections in both my underarms/breast.  I will take care of that Monday.

Christie had a hard time Thanksgiving day.  When I spoke to her today, she said that she is feeling better.  Her nausea meds might need to be changed if it has taken this long to feel better. 

Isn't she pretty?!

Thanksgiving Day



Me & Casey



Thanksgiving is a special day to thank our Lord for the blessings we have and for the relationships that are deep within our hearts.















Casey & Christie

I am so grateful for family.
















Katie & Casey

 My niece is the youngest in our family unit.  She is a wonderful young lady and my only niece.





 

 

May our Lord Jesus Christ comfort you, guide you and bring you peace every day ~





T'was The Day Before Thanksgiving ....

I'm getting excited about Wednesday night!  We are having a pj and movie nite at Christie's.  We've picked out movies and bought junk food and Casey & I plan to invade their space tomorrow afternoon.  Once we get up the next day, we will help prepare the Thanksgiving meal :)

It seems our clan has decreased in size.  Two nephews live out of state and my youngest is MIA.  Life never stays the same.

I came across this photo from Christmas 2010.  Christie had made us matching aprons.  It is nostalgia from our family roots.

For awhile, we did have some family traditions....like baking Christmas cookies.  Even though most of our traditions have changed, we do enjoy time together.

We had a lot of meals in this room!

 



This was 1993 or 1994 ~ I'm in my early 30's

I'm just happy to be spending time with Christie as she is getting through the "bad" days of her 1st chemo session.  She hasn't felt like writing in her blog, so please be patient.

I will be having my treatment the day after Thanksgiving.

Who would have thought all those years ago, what we would be facing now?

Since no one knows what tomorrow will bring, be sure you get those hugz in while you can ~

Automated Breast Ultrasound System

My annual mammogram is scheduled for mid-December.  I cannot for the life of me think about how painful this is going to be.  Came across this video and article.  (There has to be a better way!)

Does anyone know about Automated Breast Ultrasound System?

 

 

 

Newsletter #239 Lee Euler, Editor

Web Version | Subscribe | Back Issues | Resource Center | Feedback About Cancer Defeated!

The Beginning of the End for Mammography and Other Invasive Treatments By Mindy Tyson McHorse, Contributing Editor Recent progress on the breast cancer front tells me we're moving closer to more effective, gentler cancer tests and treatments. It may even be the beginning of a movement away from radiation-heavy screening tests and invasive techniques like biopsies. Here's the first round of good news: In September, the FDA officially approved use of ABUS — the Automated Breast Ultrasound System. What's that? If you're a woman you need to know, because it can DOUBLE your chance of finding breast cancer early. So keep reading. . . Continued below. . .

All Kinds of Celebration!

 

Sunday Celebration! 

Our church celebrated 13 years today.  It was wonderful seeing how much each of the "original" congregation meant to the pastor and his family.  We could tell how happy they all were today.  Matt and I have only been going there since the summer.  They have been very loving to us. Casey had the opportunity to join us for fellowship and a celebration luncheon afterwards.  Glad she got to meet folks and see where we are now.

We got home about 2:00 and I laid down for a "quick" nap.  While napping, Matt and Casey began clean up in the basement.  They worked hard for 3 hours and now there is just a small amount for me to decide what to do with.  I've been in this house for almost 20 years and, boy, can stuff pile up.  We've had a disgusting mold problem on the corner of the basement walls, but needed to weed out all the stuff downstairs to treat the walls.  Mold isn't good for anyone, let alone someone going thru treatment and having weakened immune system.  I really appreciate all the help since she has arrived!  All the piles of papers in my office have been wittled down as well. My file cabinets have been archived. 

Do you remember my new's years resolution ?!!!

We are treating ourselves to a little bit of shopping and Panera's tomorrow :)

May your days be filled with overflowing JOY ~

Bitter-Sweet

How can so many different emotions exist in me at one time?  Well, it feels like all at once, but it is more like one right after the other and around again full circle.

I've been putting some overtime in order to take off early today.  Two reasons: Christie's 1st chemo and Casey's arrival at the airport. 

 

Sort of like "bitter-sweet"

Sis's appointment was 1:00 and I was able to take off work at that time and arrived at the clinic as the party was getting started.  I wasn't going to miss it come hell or high water.  I will let her tell you the names of her chemo and such.  We got some great news from the scans ... no cancer in the liver! no cancer in her spine! If there is any cancer anywhere else, this cocktail is going to get it.  Actually, Doc said that the tumor should shrink considerably by her follow up appointment in 10 days!

Doc is throwing the book at her and that is the best statement anyone can say.  To be there right with you, not giving up, being knowledgeable in oncology and making the best treatment decisions available.

I sure do hate the fact that she has to go through this at all.  I also know that Jesus is holding her hand right now. 

and so am I

The plan was to stop in at the clinic and then run home to pick up hubby and make it to the airport by Casey's 3:34 arrival time.  Well, Matt took care of doing that while I stayed a little longer to be able to hear the doctor and ask questions. SO glad I did!  Casey is very understanding (thank you!) 

I've been jumping up and down all week in anticipation of her coming home for Thanksgiving. Been missing her to pieces!  This is the "sweet" part :)

What a day! I have 10 days off before returning to work and I plan to use them as wisely as possible!

May you have a joyful weekend!!

Isn't she sweet?!

A Little Inspiration

 

 

 

Sisterhood

There seems to be some backlash against "pink".  I understand fully about awareness versus a cure.  I get it.  I want a cure!

A few days ago, I was in a crowded room and saw a pink hat bedazzled and worn by a kindred spirit. When I finally reached her, she looked at me and I just pointed to my pink ribbon lapel pin. "Blessings to you my sister. I know what you are going through." She smiled with sadness in her eyes.

We are part of a sisterhood.  Not a community that any of us elected, but a community nonetheless.  For me, it is a way to feel not-so-alone in battling this awful disease. I wonder if that is what others may feel in the rainbow of colors ~

Now, this sisterhood hits right in my own family.  Christie's first chemo is scheduled for Nov 16. Please pray for comfort and peace as she begins her own journey into the pink abyss.

Visitors are Welcome

Visitors are ALWAYS welcome!  Saturday, we had a nice surprise when our cousin, Debbie, came into town to visit.  I was to wake up early to make it to the high school craft show to hang out with Christie.  I made it from the bed to the couch. My darling husband whispered .... wake up, you don't want to regret not going, you can sleep afterwards .... and about 12:30, I finally sat up.  I sent a text to Christie to see if she was still roaming the halls and she said "I'm walking around with Debbie"

Well, I got ready as fast as my ravaged body could move and we had a delightful day! 

Christie removed her bandages from the port and has some bruising.  She has been battling a nasty metallic taste in her mouth, so food has been yucky.  Debbie is a nurse and it was good to just talk to her. Even though she is not in the field of oncology, she is knowledgeable about so many things. 

We ended the day at Marie's restaurant for a great meal and then hugs afterwards as she made the hour trip back home.

Thank you, thank you, thank you!

Our hearts were certainly lifted and look forward to getting together again :)

Debbie

Euphuisms for Breasts

So, our baby sister in the Carolina's sent this message, lol:

Angel Cakes, Bazookas, Bazooms, Beacons, Beanbags, Bebops, Betty Boops,
Big Boppers, Bikini Stuffers, Billibongs, Blinkers, Bombers, Bombshells,
Bon Bons, Bongos, Bonkers, Boobers, Boobies, Boobs, Boops, Bops, Bosom,
Boulders, Bouncers, Bra Buddies, Bra Stuffers, Breasts, Bronskis, Bubbas,
Bubbies, Buds, Bulbs, Bulges, Bullets, Bumpers, Bumps, Bust, Busters,
Busties, Butterballs, Buttons, Caboodles, Cams, Cannon Balls, Cantaloupes,
Carumbas, Cha-chas, Charlies, Chihuahuas, Chimichongas, Chiquitas,
Coconuts, Congas, Corkers, Cream Pies, Creamers, Cuhuangas, Cupcakes,
Curves, Dingers, Dinghies, Dingos, Dirigibles, Doorknobs, Doozers,
Doozies, Double-Whammies, Dueling Banjos, Dumplings, Dunes, Ear Muffs,
Eclairs, Eggplants, Enchiladas, Flapjacks, Flappers, Flesh Bulbs, Flesh
Mellons Floaters, Fog Lights, Fried Eggs, Fun Bags, Gagas, Garbos,
Gazingas, Gazongas, Glands, Globes, Globlets, Gob Stoppers, Gongas,
Goombas, Grapefruits, Grillwork, Guavas, Gum Drops, Hand Warmers,
Handsets, Head Lamps, Headers, Headlights, Headphones, Headsets,
Hefties, Heifers, Hemispheres, Hills, Hindenburgs, Honeydews, Honkers,
Hood-Ornaments, Hoohas, Hooters, Hot Cakes, Hottentots, Howitzers,
Hubcaps, Huffies, Humdingers, Hush Puppies, ICBMS, Jawbreakers,
Jemimas, Jibs, Jobbers, Jugs, Jukes, Jumbos, Kabukis, Kalamazoos,
Kazongas, Kazoos, Knobbers, Knockers, Kongas, Kumquats, Lactoids, Lip
Fodder, LLamas, Loaves, LobLollies, Love Mellons, Love Muffins, LuLus,
Macaroons, Mammaries, Mammies, Mams, Mangos, Marangos, Maraschinos,
Marimbas, Marshmallows, Mau Maus, Mausers, Meat Loaves, Meatballs,
Melons, Milk Cans, Milk Fountains, Milk Shakes, Mmbos, Molehills,
Mommas, Mondos, Montain Peaks, Montezumas, Moo Moos, Mother Lodes,
Mounds, Muchachas, Muffins, Mulligans, Mushmellons, Nancies, Nectarines,
Niblets, Nibs, Nippers, Nippies, Nippleoons, Nippleos, Nips, Nodes,
Nodules, Noogies, Nose Cones, Oboes, Oompas, Orbs Apples, Ottomans
Balboas, Padding Balloons, Pagodas Bangers, Pair Bangles, Palookas
Bassoons, Papayas Baubles, Parabolas Bazongas, Paw Patties, Peaches,
Peakers, Peaks, Pears, Pects, Peepers, Pillows, Pips, Plums,
Pointer-Sisters, Points, Pokers, Polygons, Pompoms, Pontoons, Potatoes,
PT Boats, Pumpkins, Rangoons, Rib Cushions, Rib Balloons, Rivets,
Roundies, Sandbags, Satellites, Scones, Scoops, Set, Shakers, Shebas,
Shermans, Shimmies, Silos, Skin Sacks, Skooners, Smoothies, Snuggle
Pups, Spark Plugs, Specials, Spheres, Spongecakes, Spuds, Stacks,
Stuffing Casabas, Sugar Plums, Sweater Meat, Sweater Puffs, Sweet Rolls,
Tahitis, Tamales, Tartugas, Tatas, Tattlers, Teats, Tetons, Thangs,
Thingumajigs, Tidbits, Titbits, Tits, Titskis, Titters Domes, Titties
Doodads, Tom-Toms, Tomatoes, Tooters, Torpedoes, Tortillas, Totos Dugs,
Twangers, Tweakers, Tweeters, Twin Peaks, Twofers, Tympanies, U-Boats,
Umlauts, Wahwahs, Waldos, Warheads, Watermelons, Floats, Whoppers,
Windjammers, Wobblers, Wongas, Woofers, Yabbos, Yams, Yayas, Zeppelins,
Zingers

Feel Your Best at Working During Chemo

 

These strategies will help you keep up with your job demands during chemo treatment.

By Rita Ross

A cancer diagnosis may upend your life, but working through your treatment can help you maintain a semblance of normalcy. Balancing a career and chemotherapy can be difficult; fortunately, the workplace is more accommodating than ever. In a recent survey, 85% of employers allowed breast cancer patients to reduce their work hours and 79% okayed a flexible schedule, according to the International Foundation of Employee Benefit Plans in Brookfield, WI. As a result, about 80% of patients work through their treatment, according to the National Cancer Institute.

Try these strategies for battling common problems at work and keeping up with the demands of your job:

Time it right
To minimize the impact of treatment side effects on your job performance, schedule chemo sessions for late in the day or book them for Fridays, right before the weekend.

Fight fatigue with food
Fatigue is one of the most common side effects, so ask your boss about taking short breaks during the day—even 10 minutes can boost your energy—and eat a nutritious snack if your appetite allows. Munch on a protein bar or a tablespoon of peanut butter on a whole-wheat cracker, plus a small glass of skim milk.

Fight fatigue in other ways
A short walk can also give you an energy boost. Another strategy is to take three slow, deep breaths whenever your energy sags.

Cope with nausea
Consider temporarily relocating to a workstation near a rest room in case you need to slip out now and then.

Stay sharp
If chemotherapy or radiation interferes with concentration, schedule your toughest work duties for the morning or whenever you feel especially sharp.
 

Published October 2012

Christie's Prep

This morning, Christie went to her Chemo Class.  Even though we are not quite sure what her cocktail will be, it was a time to receive all kinds of information, including terminology.  She came with me and my husband for my chemo class.  I know that since Richard (her husband) hasn't experienced this part of the process, it will be beneficial for him.


After that, she received her "port".  When I talked to her this afternoon, she was laying on the couch resting.  My power injectable port experience was horrible.  And remember, she also received her flu and pneumonia shot yesterday. 

I would imagine that she is not feeling 100%

She talked about two meetings she was scheduled to go to this evening.  Well, doc said to keep life's schedules at a normal pace as much as possible.  It does help [me] to put both feet on the floor each morning I get up.  Purpose.

The MRI on her liver has to be done at the main hospital and the next available appointment is Dec 5. We are checking into other options.

She has to contact her family doctor to get further testing done on her stomach issues.  Hopefully, there is nothing to deal with, but we need to alleviate any other fears of the "unknown".

Well, Christie is still dealing with the news and I can remember how surreal at this time of my journey.  I am praying that people continue to hug her and encourage her. 

Oh! How important that is!

Introduction to Breast Cancer

Learning that you have breast cancer can, quite literally, stop you in your tracks. You may feel frozen in time, replaying over and over again in your mind the moment your doctor told you the news. It's normal to feel a wide range of emotions—fear, shock, depression, anger and even guilt.

Slow down, take a moment and breathe. The emotions you are feeling are completely understandable. And if you are feeling nothing, that's OK, too. Oftentimes, when a woman hears the diagnosis "breast cancer," she goes temporarily numb.

Take comfort, though, in knowing that, as of 2010, there are more than 2.5 million breast cancer survivors in the U.S. Experts report that the death rate from breast cancer has been decreasing since 1991, due to public awareness, earlier detection and advances in treatment.

The truth is, there is nothing fair about breast cancer. But you can find plenty of help and reasons for hope. Turn to your family and friends. Choose a healthcare team you trust. Prepare for a battle and be strong.

Health Monitor

Learn more Introduction to Breast Cancer

Blog Your Way to Better Health | Health Monitor

Blog Your Way to Better Health | Health Monitor

It's All About Christie

Ok, now to collect all my thoughts and my notes.  (I'm a horrible note-taker)

Christie is going to be fine

She has a tough road ahead, but she is also a tough cookie, just like her sister.

They are waiting for the HER2/neu test results (hopefully before the week is out). This will identify which type of treatments will be needed. HER2/neu protein is found on some types of cancer cells. This test shows whether the tissue either has too much HER2/neu protein or too many copies of its gene. If the breast tumor has too much HER2/neu, then targeted therapy may be a treatment option. This can include chemotherapy with drugs thru a vein or by tablet form. (My Herceptin is targeted therapy.)  We know the hormone receptor test is positive.

We will know the full name once all the tests have come in and which cocktails she will be taking.
Clues about the nature of a tumor come from how abnormal its cells look and what percentage of them is dividing. These and other factors are summed up as a grade of 1, 2 or 3. The higher the grade, the more aggressive the tumor. Cancers are also classified by stage -- a measure of how extensive the disease is. The system often used is called TNM, for Tumor (size), Nodes (cancer present or not) and Metastasis (cancer spread to distant organs). A number is assigned to each category. Once the TNM categories are determined, this info is combined with the grade to create an overall stage, from 0 for noninvasive to IV for the most invasive.

T2N1M0=IIB

T = (tumor size) = 2

N = Nodes (cancer present or not) = 1

M = Metastasis (cancer spread to distant organs) = 0

Stage 2 B

 

 

Part of the waiting we had to endure was getting clarification on lesions that were found on her spine and on her liver.  Doc said the spine was clear! The liver was inconclusive and she feels that it will prove clear as well.  First, another scan to be sure. Double-check the stomach area as well.

 

Red blood count was good

Cyst on the spleen

 

Next

Chemo Class

MRI - stomach and liver

Implant port

Echo

 

Plan - chemo first, see how much the tumor shrinks to be able to determine if surgery will be lumpectomy or mastectomy. From this, the type of surgery will determine if radiation will be part of the treatment.

 

Today, they gave her a flu shot and pneumonia shot.  She met the social worker, Denise, who helps coordinate insurance, billing, and find resources such as nutritionists, etc. She received her scripts for the nauseous meds, handicap sign, wig, and work orders (above).

 

When things "settle down" a bit, both of us have to get Oncotype DX test.

 

Doc's recommended homework: Living will

 

Doc's recommended reading:

 

 

 

Yes, siree, she is a FIGHTER!

 

I saw this smile today!

 

 

 







Spiritual Reality Check

Nothing happens in your life that is beyond God's control.

When you go through a hard time, God is never caught off guard. The truth is He wants to use it to take you to a new level in your relationship with Him. That's when your challenge becomes a "test" that can actually strengthen your faith and trust in God. So resist the urge to panic and instead praise God for the good thing He's doing in your life while He's bringing you through the storm.

Remember what the Word says:

He who began a good work in you will continue...developing...and perfecting and bringing it to a full completion in you. Phil 1:6

The fact that God is doing a "work" in you is actually an encouraging thing. It's all about having the right perspective and trusting Him.

Remember, you are not going under, you are going through!

by: Joyce Meyer

Waiting is a pain in the butt!

Today's oncology appointment with Christie has been post-poned until Wednesday at 3:00.  Doc had a death in the family.  As much as we understand, it is difficult to wait.

Christie has another MRI today and then I guess we will wait.

My opinion is that Doc Esther has 5 other colleagues in her office and if it was "urgent" enough, she would have set Christie up with one of them. 

As with anything, the fear of the unknown is what can mess with your mind.

We can't let it.

Christie / Heather / Carol

Remember, you are never alone. Jesus is sitting right next to you.

Not again!

The last few days have been shocking.  My sister has been such an angel during my illness, taking such good care of me and always lending a hand or a shoulder.  How did the tide suddenly turn?

Her annual mammogram came out fine the beginning of the year.  She started to notice changes and even went to her doctor who had the balls to say that she was having sympathy pains for her sister (me).

I'd like to kick him in the balls and tell him that is just sympathy pains for the jerks in this world.

Ladies, we are here to remind you, when you notice changes in your body, don't take no for an answer!  She didn't.

Christie's biopsy was Thursday, Nov 1.  From there, they sent her to Dr. Partin, the same surgeon I had.  Since the biopsy wasn't back yet, they discussed some of the details. 

They received more news the next day.  They were called to come in to see Dr. Partin at 11:00. After numerous tests that lasted most of the day (test, wait, go to another lab, test, wait and repeat).  At about 5:30, I received a text that they were heading home. Oh! Such a long and exhausting day!

Still not much news to report except that she has told her children, mom, dad, youngest sister and she is notifying those in her life's circle.  That is a very good thing! It is so VERY important to have people support you with love and prayers and a lending hand.

I hope Christie at least writes down her journey.  It is good therapy.  And, if she decides to publicize it, then she will get even more prayers and encouragement.  She did give me permission to share her journey with mine.

We are entwined as sisters and just living in the moment.

Lord, I don't want to live in fear. Help me remember to always bring my concerns to You in prayer so that Your peace that passes all understanding will permanently reside in my heart. I draw my strength from You and I refuse to be afraid of illness. I refuse to be afraid of death itself.

I Corinthians 15:
⁵⁴ Then, when our dying bodies have been transformed into bodies that will never die,^[j] this Scripture will be fulfilled: “Death is swallowed up in victory.^[k]
55 O death, where is your victory?     O death, where is your sting?^[l]”
AMEN

It was beautiful to have my new church family pray for my sister today.  My pastor gave me a prayer cloth annointed with oil.  I will take it to her tomorrow when we meet with Dr Esther (my oncologist). I hope to take notes and be a support for her. 

Lord, I come to You today and pray for healing and wholeness for my sister. I ask that sickness and infirmity will have no place or power in her life. I pray for protection against any disease coming into her body and trust that You will place Your hand upon her body and heal her.  I ask that you give her strength and comfort to endure the treatments that will rid the cancer cells from her body.  I pray for a miracle that the tumor shrinks to absolutely nothing remaining and that the doctors will see for themselves just what a miracle can be!  Use this situation to Your glory, God, and let Your light shine upon everyone who watches! Amen and Amen!

Herceptin #15

Update #15 not #9 (chemo brain)

Today was my 15th Herceptin drip.  Targetting those HER2 proteins! Zap ~

 

I have 2 more to go!

Day after Thanksgiving and 2 days after my sister's birthday in December. 

I asked Nurse Karen what happens next?  I don't see the oncologist until January.  She said that I will receive a phone call to set up an "overview" appointment.  They will review everything that has occurred since the beginning of my journey.  I will still need tests here and there. And still need checkups with my oncologist.  Still monitoring the "5 year pill".

So, still not quite over

I couldn't have done it without the encouraging words and prayers received from so many people in my life.  Even people I don't even know.  It's that positive energy that has gotten me through some of the rough times and bad days.

It's natural to think about death while going through something so intense as cancer.  It's crazy even to say those words .... "I have cancer".  You HAVE to go through it to get to the OTHER side.  Hopefully, in one piece.  Much wiser, much more humble, full of grace and compassion for others.

The Lord is my light and my salvation - whom shall I fear?

The Lord is the stronghold of my life - of whom shall I be afraid?

Psalm 27:1