Back on Coumadin

This morning, I met Nurse Michael to do a final review on the clinical trial for the radiation treatment. Once the MRI and blood work comes back, we will know if I qualify.  Should know this week!  The computer randomizes the "arm 1" and "arm 2" (6 weeks or 3 weeks).  The "boost" is not a big difference from the standard treatment (1.0 vs 1.5). 

I mentioned to Michael that my symptoms were back from when the port had created the blood clots. Its been about 2 weeks since getting off the Coumadin. So, Michael wanted me to wait on drawing blood and let Doc Esther check things over.  I was holding my breathe a bit because I didn't want an extra test like the ultrasound. I wasn't on the schedule to see her today either.  Mike and I had a great conversation waiting for her.  I like to ask folks why they got into the oncology profession.  He said it was because of his grandma. 

He gave high recommendations of the doctors I have on my team as well.  He said that if he or a family member ever got cancer, he would go to them.  That is real encouragement for me.

Doc Esther came in and sat down in relief.  She had been on the go all morning.  She pressed my underarm and I winced in pain. 

Outcome:  Back on Coumadin

As long as it takes the pain away and prevents a blood clot from killing me, fine by me!

Note to self: Get a medical alert bracelet

I asked her why she was in this field and she said that she loves to learn and loves people more than test tubes.  I just love her! She is real excited that I am taking part in the trial.  She said that is the best way for docs to know what works and what doesn't.  30 years ago, most of it was a guessing game and it was so frustrating.  She also said that the treatments I got were all clinical trials at some point.  I'm honored to be doing it.

Four vials of blood work .... and I expect a call this week for a yes or a no on the trial.

I was so incredibly tired today.

Clinical Trial ~ Yes or No

Today was my follow-up with Doc Esther after my 6th & last chemo session.  She liked my numbers! Took me off of coumadin!!! And said that the welts I have from the chemo will begin to fade in about two weeks.  Also, she said my hair will begin to grow.  I've just about lost both eyebrows and I'm doing a lousy job drawing them in.  Not like my post Express Yourself

She also wanted to talk to me about a clinical trial to consider.  At first, I was all about helping other women by participating in research.  My grandpa did and my dad did..... but, I'm confused at all the language.  I have a few days to research, ask questions and then give them an answer.  Plus, I will need to be sure that I do qualify with some more testing.  Then I read about clinical trials and insurance.  Will this be covered?  That will be a BIG factor.

Any feedback would be appreciated



Next on the treatment schedule: daily radiation

Next visit to my chemo oncologist: August!

Side note: I asked Doc if I had aggressive cancer.  She said that because I tested positive on the 3 protein tests, that they had to "throw the book at me".  Hmmmm .... What are my chances of getting it again?  She said "we are going to make sure it doesn't come back again". 

I know there are no guarantees in life

But I do have faith.  I do have a positive outlook.  And I know this Doc knows her stuff.  So, even if that day should ever come, I pray I handle it with grace.