welcome

(photo of my sister's backyard fence...all photos are thru my lens)

This is just a way to express my thoughts as I walk this path and journey through as a breast canSURVIVOR.

Make cancer mad, just piss it off by misspelling it..... like "canzer"

In remission ~ December 2012

Invasive Moderately Differentiated Ductal Carcinoma T1cN0M0 Stage 1

Estrogen receptor-positive cancer - Here is how it began



Showing posts with label organized. Show all posts
Showing posts with label organized. Show all posts

Wednesday, February 15, 2012

That Fogginess

Duct Tape is Wonderful
So there IS such a thing as Chemo Brain !!! I knew it just wasn't ME....seriously?!  Pre-chemo, I use to say I had "some-timerz", not Alzheimer's (hope I'm not offending anyone).

The article states
Here are just a few examples of what patients call chemo brain:
  • Forgetting things that they usually have no trouble recalling (memory lapses)
  • Trouble concentrating (they can’t focus on what they’re doing, have a short attention span, may “space out”)
  • Trouble remembering details like names, dates, and sometimes larger events
  • Trouble multi-tasking, like answering the phone while cooking, without losing track of one task (they are less able to do more than one thing at a time)
  • Taking longer to finish things (disorganized, slower thinking and processing)
  • Trouble remembering common words (unable to find the right words to finish a sentence)
I can certainly attest to it!

I see my oncologist in the morning and my blog helps me keep things in order.  Like most people, I make lists and try to remember it all.

Day-to-day coping

Experts have been studying memory for a long time. There are many resources that might help you sharpen your mental abilities and manage the problems that may come with chemo brain. Some things that you can do are:
  • Use a detailed daily planner. Keeping everything in one place makes it easier to find the reminders you may need. Serious planner users keep track of their appointments and schedules, “to do” lists, important dates, websites, phone numbers and addresses, meeting notes, and even movies they’d like to see or books they’d like to read.
  • Exercise your brain. Take a class, do word puzzles, or learn a new language.
  • Get enough rest and sleep.
  • Exercise your body. Regular physical activity is not only good for your body, but also improves your mood, makes you feel more alert, and decreases tiredness (fatigue).
  • Eat your veggies. Studies have shown that eating more vegetables is linked to keeping brain power as people age.
  • Set up and follow routines. Pick a certain place for commonly lost objects and put them there each time. Try to keep the same daily schedule.
  • Don’t try to multi-task. Focus on one thing at a time.
  • Ask for help when you need it. Friends and loved ones can help with daily tasks to cut down on distractions and help you save mental energy.
  • Track your memory problems. Keep a diary of when you notice problems and the events that are going on at the time. Medicines taken, time of day, and the situation you are in might help you figure out what affects your memory. Keeping track of when the problems are most noticeable can also help you prepare. You’ll know to avoid planning important conversations or appointments during those times. This will also be useful when you talk with your doctor about these problems.
  • Try not to focus so much on how much these symptoms bother you. Accepting the problem will help you deal with it. As many patients have noted, being able to laugh about things you can’t control can help you cope. And remember, you probably notice your problems much more than others do. Sometimes we all have to laugh about forgetting to take the grocery list with us to the store.

Sunday, January 1, 2012

Information Overload

So, I’ve discovered I’ve had a lot of “ectomies” in my life… Tonsillectomy, Hysterectomy, Oophorectomy, Lumpectomy.

And I’ve also noted that with as much data that is out there about each one of us, there is still a lot of systems that are not connected to one another. Even if it is in the same building.  There are SO many forms that I’ve had to fill out since my “journey” began. So, why can’t they share all this data?

And with each medical person that comes in the room, I’m asked my date of birth.  Next time, I’m asking if they are giving me a birthday card. 

Getting Organized: Anyway, I created a list of questions to prepare for the radiation oncologist appointment. My sister, Christie, posed as my secretary ~ notebook in hand, ready for onslaught of information.  It is certainly important to get organized.  In the original packet of information my surgeon gave me, I came across an organizer from American Cancer Society and requested it (free). http://www.cancer.org/MyACS/Ohio/ProgramsandServices/get-well-ohio

Family medical history: I’m glad my sister was with me to help answer our family history of cancer, not to mention other diseases. I’ve had to repeat my medicine list several times.  http://www.cancer.org/Cancer/news/Features/your-family-health-history  It’s a good idea to have this information written down … or type it and make copies for each “team” member.

Legal Documents: I already had my will and power of attorney documents done a few years ago.  (It’s a good idea to get these done if you haven’t … and if you have, keep them up-to-date). It can be a dreary subject, but in my line of work, I’ve had to assist people on many occasions. When my sister died, my husband and I not only bought plots next to her, but we took care of those pesky details.  So PLEASE do too!
http://www.cancer.org/Treatment/FindingandPayingforTreatment/UnderstandingFinancialandLegalMatters/AdvanceDirectives/advance-directives-advance-health-care-directive-formats

There are so many resources.  The home page for these links is http://www.cancer.org/index