Oncologist Update after Chemo #5

Monday morning follow up visit with Doc.  I had an easier time getting in and out than last visit.  So glad! Matt drove there and then to work so I don't have to worry about quick reflexes.

She took a look at my numbers and approved me for the last cocktail scheduled for April 26.  Won't know until the blood tests the morning of to see if I will need another blood transfusion.  The fatigue has really taken a hold of me and I need the cane now more than ever.  She asked me about my depression and I was honest and said I still cry.  We talked about anti-depressants and I'm not too keen on them because I hear they can do just the opposite of what they are suppose to do.  But, I also know I need help.  She mentioned that they will also help the hot flashes .... now, who can resist that.  The one prescribed is called Citalopram.  If you know anything nasty about it, please let me know.

I'm rescheduling my dentist appointment due to the warfarin.  She plans to take me off of it after all the chemo is out of my system (June?) 

I made it to work (after a week of being on leave) around 10:30.  It was wonderful to see the birthday greeting cards! Debbie V outdid herself with darling gifts and thoughtful ones!  I left part of them at work, so once I have the collection, I promise to snap photos.

It was a tiring day for this sicky so my sister picked me up about a 3:15.  I got home, put on my pjs and feel asleep on the couch! Yes! Sleep!

Mom is coming back home Wednesday from S.C.
Jasmine is doing well driving momma's car to work and back.
Casey is coming home next week.

Feet of Innocence

Tomorrow is another day of renewed strength .... little by little.

Sunday ~ Day of Rest

First day in a week I have my street clothes on.  No, I don't run around the house naked ... just been wearing my 100% cotton pjs!  But you knew that.

Finally felt able to get all my bills taken care of and feel less frantic that I have forgotten to pay something.  Even though the paycheck is 60% disability, we are managing just fine.

Late last night, I reactivated my facebook account.  It's been a year and two months since being on it and there has been some changes to get use to.  Amazing that it kept all my photos and notes from  before.  Well, that's good because Lord knows I have a lot!

Decided to play with the camera a bit.

Spent some time reading on the front porch

 

Maximum Ride ~ James Patterson

The lilac bush is starting to bloom! Oh, it smells sweet and heavenly

  

The flower basket that Christie gave us is still doing well

The neighbor's tree is the first to bloom in early spring.  It's blossoms are just about gone now, but I captured it while in its full beauty.

Here I am in all "my glory"

Well, at least with a pretty pre-tied scarf



We went to dinner today with Dad & Marge.  First time out of the house in a week. Ahhhh ~  The sun was shining and the warmth felt good.

Yes, I think I'm ready for tomorrow.  Whatever it may bring ~

No Longer in My Dreams

One more day to pull it together before work on Monday.  I have absolutely no idea how I'm going to even walk in the building.  Just a little weak and shaky.

Hubby and I watched a few rented movies tonight and ordered a pizza.  Kinda greasy, but staying down so far.

It's been a hard week, but I am trying to keep my mind and spirit focused for the end of the hardest part of treatment.  Reading other women's blogs gives me encouragement, but also gives me anxiety as there is always potential for setbacks. 

I do know one thing.  Once my body is healed (or should I say, has strength), I'm going to do things that I haven't done before. Like hang gliding or parachuting.....

well, at least make the time to do things 

My husband and I never went dancing before.  That would be nice.  I have a brand new 10 speed I got about 4 years ago, still in the box.  We have only been on 1 vacation together.  There are people I want to visit, that's going to be a BIG time thing to do.  Plus, I want to see the tall Redwood Trees and a national park and the Grand Canyon and the Blue Ridge Mountains (again). 

Mount Mitchell - highest peak east of the Mississippi River

No longer in my dreams.....

I'm telling ya ~

Do it now, while you still can.
Enjoy life every single day. 
We work so hard and are exhausted when we get home.  Stop!
Balance ~ it's so important ... that's what we all should strive for. 

The Big 5-0

Sorry it has taken me a few days to get back on-line ~

Tuesday, Apr 10th was a big milestone.  God has granted me another day to breath, and in the middle of nausea, pain and tears, I am doing just that .... breathing.

A few years ago, I thought that my 50th birthday would be a big celebration bash!  I was telling everyone that I expected a "surprise" party and dreamt that everyone I knew would be there.  My, how things change quickly.  Most of the people I knew are no longer in my daily life.  More of the "losses" in my life.  But, sitting here at 1:00 in the morning, I can just let my mind recall memories of long ago places and friendships and feeling thankful for each one of them.    Snippets of childhood memories, of simpler times.  Perhaps it is from watching too much old programming today of Andy Griffith and the Waltons! How different life is now.

Jasmine stopped over for a bit and had dinner with us.  My first meal post-chemo.  Good going down, not so good coming back up. (sorry folks)

Christie and Katie stopped over and she has out done herself again with another beautiful quilt.  Just amazing.

 

Casey sent a vase of flowers and some pink b.c. items. 

It is strange how this birthday will always be remembered with fighting breast cancer. 

I hadn't had the strength or motivation to get online.  I can't say that Chemo #5 has been any worse or any better than the others.  I wanted to stay on top of the pain this time around, which means pain pills, which means sleep.  The body heals when you are sleeping.  By tomorrow, I will force myself to get up and move about the house.  Start getting my energy level up and reclaim my body.

I've done a little better on the mental side of things ... not crying (as much) and not having a pity-party. 

I only have ONE MORE LEFT!  No room for pity-parties..... even if I do look like Uncle Fester!

The rest of my birthday album

Thank you to all the birthday wishes! I will hold them in my heart :)

Meet Jackie Zavodney

http://www.ohio.com/news/local/jewell-cardwell-breast-cancer-survivor-focuses-on-her-blessings-1.284213

Jewell Cardwell: Breast cancer survivor focuses on her blessings

By Jewell Cardwell
Beacon Journal columnist
Published: March 23, 2012 - 11:16 PM

Jackie Zavodney (right) of Wadsworth goes over some questions with oncology nurse Regina Saus before Zavodney receives chemotherapy for her breast cancer at Akron General Medical Center's McDowell Cancer Center Tuesday in Akron. (Karen Schiely/Akron Beacon Journal)

View More Photos>>

Jewell Cardwell: Breast cancer survivor focuses on her blessingsMarch 24,2012 03:16 AM GMTJewell CardwellBeacon Journal Publishing Co. Copyright � 2012 Beacon Journal Publishing Co. Inc and Black Press. All Rights Reserved. Any copying, redistribution or retransmission of any of the contents of this service without the express written consent of the Akron Beacon Journal is expressly prohibited.

Jackie Whitt Zavodney has a book in her, which those close to her say is determined to get out.

But the former communications manager for the Summit County chapter of the American Red Cross — one of the many casualties of downsizing there — is battling aggressive breast cancer.

Little could she have known years ago when she and the late Rosemary Cozart, the Red Cross coordinator of disaster relief, started the “Acts of Courage” recognitions that she would be tapping into her own reservoir of courage to get through this chapter of her life.

The 43-year-old Wadsworth mother of two (Shawn, 10, and Tristan, 12) recalls being so busy, working a brief but intense part-time job for the March of Dimes’ “March for Babies” event that she ignored a message her body was sending her.

So, she’s going public to talk about her crisis in hopes it will help others, telling all women to be vigilant about those breast self-exams and getting timely mammograms.

“I noticed back in February that I had a lump in my right breast,” Zavodney said. “I had them before and when they were checked out they always turned out to be nothing. So I didn’t stress about it too much.

“I didn’t revisit it again until late May or early June. By then, it had grown twice in size and was painful. ‘OK, this is not typical,’ ” she said of the conversation she had with herself.

She hurriedly scheduled a mammogram that detected a mass, and a biopsy was performed. “I never expected that phone call saying what it said: Stage 3 invasive ductile carcinoma.”

The 1st & 2nd Day Post Chemo #5

I didn't do "too bad" Friday at work.  I was anxious to leave though because of chest pains, which I believe was heart burn.  Matt picked me up at 2:15 and took me to the clinic for my shot.  We were too early (shot is given 24 hours after chemo ends, which was more like 3:30).

Nurse Dawn was concerned that my blood pressure was high.  She gave me a swig of milk of magnesa and gave me signs to look for. 

She said "lots of people go to the ER during this process, so don't mess around with it if it gets worse".  No worries, during the night, it soothed and settled down. 

O my Gosh! Just one more to go!!!

I went to sleep after 6pm, woke up a few hours later with a craving for Taco Bell.  Really, for the mango/strawberry drink .... hubby went and got it.  My heart burn was gone too.

Stayed up long enough to watch a recorded TV show and then off to bed again.  I sure like my room downstairs (right next to the bathroom).  So much easier.

I woke up this morning and Matt made scrambled eggs & toast. Nice.

This afternoon, he picked up my fav .... Carmel Frappe .... yummmmy

 Hoping these "bad days" that come aren't going to be "real bad days".  I've got a lot that I want to get done. 

The flowers that we pressed from Rickie's funeral is ready for some creative projects.  Mandy is just the gal to help me with it!

The Shoe Fairy

The other day, my sister got to see first hand the response to the question "Do you carry size 5-1/2 shoe?"  JCP said "no".  How shocking, right?

Next thing I know, Christie comes over with boxes of 5-1/2 shoes she found!  LOL.  Bless her heart.  Unfortunately, my feet are so bad that it is hard to find comfortable shoes.  By the way, Doc said to wear thicker socks and soles ... so that may just bump me up to the next size.

Check out how cute these are!  Got some keepers in here!

Thank you Christie!

You are spoiling me!

Chemo Session #5

It was a very close call that this cocktail hour(s) was to be cancelled for another time.  My counts were low, so Nurse Tracie wanted to wait until Doc came by to review the blood results and make a determination.  The most worrisome ~  the Hgb was 9.6 and the range is 11.7-14.7. (check on the link for more information)

I began to weigh the pros and cons about cancellation:

• Herceptin would still be given and it doesn't have intense side effects.  SO, that would mean that I wouldn't be feeling  bad on my birthday this coming Tuesday.  That is a plus!
• However, postponing treatment would push my dates further and, quite frankly, I want to GET THIS DONE!

Doc Esther arrived and asked about the neuropathy in my hands and feet.  Hands are not as bad as my feet.  She suggested wearing thicker socks and thicker soles in my shoes.

Then she gave the go ahead .... and included a blood transfusion.  Now, you already know how I feel about that!  But I didn't whine .... I said LET'S DO IT!

And, a whirlwind of activity began.  Nurse Tracie was another great nurse to care for me today.  She had a college student from Malone shadow her and learn about the process.  Which is cool because I get to hear more details of what is going on.  These people are smart.

I was in a smaller section this time, which made it hard for my guests today.  Teri, Jasmine and Adam rotated, as there was only one chair.  And, like I said, the whirlwind made it hard not to be in the way.

Jazz and our favorite hand sanitizer

First to stay and experience the thrill of the port was Jasmine.  She held up very well with the needles and such.  We had a great visit together and I'm so glad she was there with me.

Then, Adam came in after getting off his 3rd shift job.  He was with me when Doc assessed the situation and gave the go ahead.  He was also there when the pre-meds were dispersed, including the Benadryl.  Wow! that stuff hits fast and hard.  But, I managed to stay awake so we could catch up on news. 

Early Photo (forgot to take my camera out when he was there)

At 11:15, they were ready for the 2nd drip of Taxol (3 hour drip and the one that causes the most side effects).  We said our good-byes as I made yet another trip to the restroom.  Remember the ice?  Yeah, so I go before the 3-hour-ice-on-my-limbs is initiated!

By that time, the girls were hungry and I talked them into finding food at the main hospital.  It was a beautiful day and Jasmine agreed to take my camera to get some photos around the grounds.  She did a great job! 

Album - McDowell Center

Teri & Jazz

I fell asleep while they were gone.

They brought back a turkey wrap for me and they decided to picnic outside with their lunch.  Great plan .... I ate what I could and fell asleep again.

Then the Carbplatin .... homestretch!  By this time, Matt picked up Jasmine and Teri came back to keep me company.  We also had a good visit. 

It didn't take long for this last chemo drug and then, BLOOD TRANSFUSION.

Nurse Tracie encouraged me to drink 64 ounces of water every day to help with all the symptoms. I know this is what I have to do.  And this time, I am really going to do it.  No more "trying".  I found my 32 ounce jug from the hospital.  Just got to fill it up twice during the day.  I CAN DO THIS!

I don't want to feel bad.  I want to take any opportunity to help myself feel better.  I was never a water drinker.  I don't drink carbonated pop.  I do drink coffee all day long and ice tea at home.  Neither will do the job.  Wish me luck!  Send me "reminders"!

Tonight

Teri left for home.  She gave me a wonderful birthday card.  Hard to believe I'm going to be the Big 5-0. 

I'm all snuggled in the "Ladies Lounge" with my new body pillow, sheets, comfy pjs and pets.

Will go to work tomorrow until 3:00, Matt is driving just in case.

Then, to the clinic for my shot.

Staying focused.

Staying on top of the pain.

Resting.

Laughter.

Daily devotionals.

And writing to you.


Stay tuned

Next blog .... how my sister spoils me rotten.

Day Before my 5th Cocktail

It's the day before my 5th cocktail session .... amazing how almost-normal-I-feel.  Trying to stay positive that the side effects will be minimal this time around.  Just in case, gonna go to the super store tonight and do some shopping and then go to a yummy restaurant.  When sis took me to the mall Sunday, I didn't last too long walking.  So this time, hoping for a scooter.  My right ankle is swollen again too and my back is on fire.  Doc said chemo drugs go to "your weak spots", but I'm thinking I need it checked at some point.

Me & Teri

Teri is arriving tonight to be with me for chemo day.  This is her 2nd time and she wants another chance to hang out.  It's hard to believe .... I ONLY HAVE 2 MORE LEFT!

Hope for the Future

I named my blog "Living in the Moment".  After writing for a few months, I see that planning and thinking about my future is quite important. 

There is nothing wrong with focusing on today.  As they say, we are not promised tomorrow.

So, somehow, one must keep that balance.  Live in the here and now by paying attention and stopping to smell the roses.  Plus, one should be able to "dream" about tomorrow and strive for those things in life that bring us joy and happiness.

I got so caught up in trying not to worry about the chemo chair and the side effects, by not thinking too far ahead on the calendar.  But, now I just want to think even further ahead on the calendar and day dream about physically being well again to handle each day and what it would be like to get back into the activities I once enjoyed and took for granted.

Christie took me shopping today.  Got 100% cotton pjs and 100% cotton sheets.  I'm anxious to see if the night sweats are alleviated!  I will keep you posted.

Palm Sunday ~ May life bless you deeply

Slow Things Down

Sometimes you have to slow down to really appreciate things.  I think this is my all time favorite video so far in my life.  Enjoy!


Thanks Sally!

The Color Run

Remember how I was just saying where can I find some color to capture in my lens? Well, I had lunch with Marylee and she has been invited to experience The Color Run in June.  I am captivated by ALL THE COLOR!

Creative Juices

This is a "feel good" week finally!

I feel I have the energy to get some things done and I'm leaning towards the area of creativity.  For one, I want to revamp my blog, play with different templates and clean it up.  My sister is coming over this weekend to bounce ideas.

I am just itching to get out there with my camera.  Just trying to think of a place where I can find interesting colors ... interesting subject matter.

Flowers at Springfield Lake

I think it would be neat to find a way to display the beautiful encouragement cards I have received over the past several months.  I found some great ideas for bulletin boards here.

My side effects have eased up considerably and the fogginess in my head as well. 

PS. still got to write many thank you notes, which I plan to do before the weekend is over. 

Safer Breast Implant for Women...Research Continuing

New Hope for Breast Cancer Patients that opt for reconstruction thanks to Akron researcher. Watch Video

 

Posted: 03/27/2012

• By: Alicia Scicolone, newsnet5.com

AKRON, Ohio - A University of Akron researcher, who watched a loved one die from cancer, took charge of the deadly disease in her mind.
She couldn't stop thinking of how to beat it, so no one has to go through what she watched her family suffer from.

After years of working closely with big name cancer experts across the country, she is now developing a safer breast implant for women who opt for reconstruction after a breast cancer diagnosis.

During the process of reconstruction following mastectomy, a new kind of implant could actually fight infection, scarring and even cancer.