welcome

(photo of my sister's backyard fence...all photos are thru my lens)

This is just a way to express my thoughts as I walk this path and journey through as a breast canSURVIVOR.

Make cancer mad, just piss it off by misspelling it..... like "canzer"

In remission ~ December 2012

Invasive Moderately Differentiated Ductal Carcinoma T1cN0M0 Stage 1

Estrogen receptor-positive cancer - Here is how it began



Saturday, July 27, 2013

Moving to a new website

My sister and I are SO excited!  We have combined our experiences and set up a new website that also includes our blogs.  A brand new look and new endeavor.



Come and take a peak!

 
 
 
This is the last post on Living in The Moment ....
 
but I'm not remaining silent!
 

Sunday, July 14, 2013

Back to Work!

Tomorrow is my first day back to work since June 28.  Getting butterflies in my tummy, which seems to happen after being off for awhile.  Never know what I'm going to face when I get there (kinda hard to describe).  But, I'm as ready as I'm ever going to be!

This month makes 1 year since my radiation treatments ended. I think that is long enough to make a decision. Most of the bleeding/seeping has stopped, and the bruising is slowly clearing up.  Still looks like Frankenstein! I don't regret the procedure, even though sometimes it feels like someone hit me with a baseball bat (too graphic?)

~~~~~~~~~~


Saturday, we had a wonderful get together with extended family from my father's side.  It was great to see everyone again....it seems once a year now.  There is also an emptiness in our hearts for the ones that have moved far away and for the ones who are now in spirit.  The world keeps turning and we keep getting older. 

It reminds me of one of my favorite songs that I have posted before. It makes you think about your own legacy.


Nichole Nordeman - Legacy 



My sister and I are developing a website.  Christie is the brains of the operation and my husband is working on logo ideas.  We hope that it will be helpful and hopeful to breast cancer patients.  It is a need to "give back" and to help others going through the brutal journey.  So....stayed tuned!


Christie's green thumb

Tuesday, July 9, 2013

Follow-up from Reconstruction

My follow-up appointment was this morning.  It lasted all of 5 minutes.  He was amazed at the bruising.  Good news, no signs of infection.  Just remembered, I forgot to ask about the pathology report.  I'm sure it is fine or else he would have brought it up.

I will have to go back about 3 more times.  At one of those appointments, the surgery tape will be removed and the stitches.  Doc said that it will look more like the other breast in about 3 months or so. 

Would I do it again?  Probably. The weight on my shoulders and back does feel lighter.  My bra straps aren't leaving crevices on the top of my shoulders!

Kind of wonder if I should have done the other side as well.  Guess I won't know until I'm fully healed.  Will they really be symmetrical?

My sister is managing her radiation treatments.  She is a real trouper!
No need for a scarf anymore! What a beauty!


Me & Christie
Next follow-up is July 23. Same day as my oncology visit .... wonder what Doc Esther is gonna think of my "boob job".

Wednesday, July 3, 2013

Reconstruction - Post Surgery

Hello all! Day 1 of post surgery.  Yes, there is pain - plus, taking antibiotics as instructed.

Last night, I was curious (who wouldn't be) and decided to peel away the bandages to see my ta-ta.  Lots of blood on the gauze and I can see where the cuts were made. Still have the marker drawing on my chest (tic-tac-toe anybody?)

I get to shower after 3:00 today!

So, as I was exploring, I found an electrode on my hip from the EKG.....and I was worried they would leave something "inside" me during surgery! hahaha, I was lucky!


Electrode laying on the lid of my laptop

Amazingly, I didn't go to bed when I got home until after midnight.  I woke up a lot too because I couldn't get comfortable. 

I don't regret doing this, not for vanity reasons, but for comfort.  They don't make bras that come in 2 different cup sizes.  (although that would be an interesting manufacturing business)  Doc says the breast will start to look "normal" in 3 months or so. 

My follow-up appointment is July 9th. 
 
 
Have a Safe & Happy 4th of July America!





Tuesday, June 25, 2013

Pre-Surgery Testing

Talk about walking down memory lane..... I started at the same place (building) where my diagnostic mammogram was done Dec 2011. 

First was the check-in with a nurse to ask a few more questions for my record.  She did my vitals and then sent me across the hall for my EKG and blood work.  A big kudos to Sheila who didn't even make me flinch.  Two vials and she was done!

Then I made the walk across to the other building to radiology.  Now that really brought back memories.  There, I had my chest x-ray.

So, I'm pretty sure everything will check out okay.

Ready for surgery, July 2

Monday, June 24, 2013

Pre-Admissions

The hospital pre-admissions called me today to update all my information.  She said the last surgery recorded was December 2011 .... lumpectomy.  Yep, that sounds about right.  That long ago? A lot of times, it seems like yesterday. 

I am to report to pre-surgery testing tomorrow at the same place I found out I had cancer.  Glad she told me that because I planned to report to the place I had the port inserted.  (would have been the wrong place)

This little process here is taking me back to some memories. 

And that's what they are....memories.

I try not to think about that "anvil-over-the-head" feeling.  I'm in remission and want to stay right there!

I'll be off work for a total of 12 days.  Hope to hang out with Sis for some of those days.  Looking forward to some R&R.

Thursday, June 20, 2013

Reconstruction

I finally decided to do it .... Reconstruction. 

Most people kinda give me a double-take when I tell them, "no, they aren't touching the affected side. They are taking care of the good side."  I really don't want things stirred up if you know what I mean.  The plastic surgeon said that it is more difficult to reconstruct skin damaged from radiation.  Besides, it really isn't that bad.  It's just much smaller. Ha! So, we are downsizing!

June 25 - pre-surgery testing

July 2 - Surgery

Doc said recovery is 2 weeks. Since I have a desk job, just taking a week. 

No worries, no concerns, looking forward to some down time at home.

I'll certainly let you know how things are going!

Tuesday, June 18, 2013

A Shot of Cortisone

Hi all!  I finally got some tests done (June 4) on my right knee to discover moderate arthritis aggravating my knee and making life difficult.  It actually started with soreness and swelling in the back of my knee that my family doctor thought was a Baker's cyst.  The MRI and x-rays did not show a cyst....just a little bit of fluid.  I met with an orthopedic doctor (June 7) who took a lot of time with me and diagnosed me and gave me a cortisone shot in the knee.  I've never had one of those miracle shots before and WOW, it has provided such relief!

Today, I had my first physical therapy session to learn how to build some core strength and begin on the road to recovery.  I have sessions twice a week. It was so difficult to try to walk and exercise through all the pain throughout my body.  The cortisone shot not only helped my knee, but a lot of other joints, aches & pains. 

Once I fulfill my sessions, I will be able to utilize the facility for FREE for a month!  I like that :)

This weekend is actually the first time I have felt better and felt like "me" in almost 2 years.
 
A-MAZ-ING!!!!
 
 
 
 

Monday, May 20, 2013

Howdy

Monday, the beginning of a new week.  How have you been?  I haven't had much to report under the "cancer" umbrella.  I have an appointment with a plastic surgeon to discuss reconstructive surgery. Don't know if it will happen yet, but I thought I would check it out.  I am doing better in my diet....trying to exercise more, dealing with the bone/joint pain.

Matthew has finished the bulk of his classes.  One more during the summer and he will graduate in the Fall.  Now, he is job searching.  Such a job in itself!

Jasmine has now moved in and going into the 3rd week of being home.  Lots for her to get settled into, but she will find her way.

Casey just closed on her first home.  Her new job and her new home are keeping her busy.  We hope to see her in August!

All of our fluffy-butts are doing okay except Moe.  He is not going to make it much longer. That makes my heart sad.

On another note, my sister had a 2nd surgery and this time CLEAR MARGINS!  Today was her first day back to work and soon she will be starting radiation.  She is a strong woman and doing well in her journey! 

I will keep in touch from time to time .... stay well and be happy!



Colorado ghost town

Wednesday, May 1, 2013

Looking Forward

When all this cancer stuff began, blogging became good therapy for me.  To tell you the truth, it really helped keep dates and events organized.  Chemo brain still haunts me.  So, when I thought about the name of this blog, living in the moment was exactly what I was doing.  I had to learn from step 1 terminology and everything else a person has to comprehend when hearing those words "you have cancer".  Since I didn't have a crystal ball and I didn't know from day to day what was going to happen...perfect theme.

Now, I don't blog as often because a lot of the treatments, tests and appointments are done.  I'm still taking the Armidex (5 year pill), still see my oncologist every 3 months....and I'm sure tests will occur from time to time. 

Cancer took a whole year + some and I'm ready to move from "living in the moment" to something else.  A reoccurring phrase has been cropping up in my conversations with Christie
 
Looking Forward

She is in the middle of her treatments....first chemo, then surgery, next is radiation.  It was, and may still be, important in her journey to live in the moment but I think she is getting to the point of looking forward.  We had fun thinking them up.

Looking forward to ~

  • Having "my" time back again
  • Energy, strength
  • Hair!
  • Warmer weather
  • Taking walks with each other
  •  Living life!

And, there are others I have thought of .... what are you looking forward to?


Tuesday, April 16, 2013

Reconstructing My Life

Yesterday, I saw my family doctor as a follow up to some medication changes he recently made.  I'm doing just fine in that department.  He wants to do another blood panel in 4 months.  He seemed very pleased at the last results .... about $100 came out of my pocket for it.  So, one more, then I'm putting my foot down.

Today, I saw my oncologist for my 3 month check up.  She asked if I had my colonoscopy screening set up since I'm now "of age" .... Should of had it last year when I turned 50, but I was busy!  Now that I turned 51 last week, guess I should put it on my calendar.  She asked if there were any relatives who had colon cancer.  I don't think so. 

She asked about the neuropathy, the pain.  And I asked about the weight gain and fatigue.  You will NEVER believe what she said! Eat right and Exercise! Imagine that!
 
Questions for doc

As usual, I had my written questions next to me.  She would look them over and answer them during the examination. 

* Since I'm taking estrogen blockers, why not just yank my one and only ovary and be done with it.  She said NO. Leave it as is.  (anybody know why? I got side tracked and forgot to ask)

* Should I get reconstructive surgery?  I really didn't care either way (nor does my husband).  But as time is going on,

my girls are getting more and more unbalanced.

Not my daughters, the other "girls"

She recommended the procedure and also recommended a plastic surgeon.  My sister heard great things about this doctor, so I will begin making plans.

That's all I can remember at this time.

All our prayers for the Boston people and the visitors from all over the world that were there during the heart-shattering chaos.  Prayers for the first responders, the people who began caring for the victims and each other ... for the families of lost loved ones and those who were injured. 

This world is broken .... ask God to hold you, give you comfort and amazing grace ~

Sunday, March 31, 2013

Resurrection Sunday

A beautiful day today ~

It started with an endearing church service.  The children are so darling and they are always a part of the service.  Today was even more special than normal.

Then, we spent time at my sister's house with the family.  Not all of our loved ones were there, as our youngsters have moved to other states.  Thank goodness for video chat and cell phones!

God is our refuge and strength, a ever-present help in trouble.
Psalm 46:1

In the beginning was the Word, and the Word was with God, and the Word was God.
Psalm 42:5

Peace I leave with you; my peace I give you. I do not give to you as the world gives. Do not let your hearts be troubled and do not be afraid.
John 14:27

Friday, March 15, 2013

CureSearch Children's Cancer


Maxwell Krem, MD, PhD, from The University of Washington strives to treat his patients as he would want to be treated, delivering state-of-the-art medical therapy. He hopes that his research will lead to targeted therapies. Read more

Sheridan Bautista was diagnosed with osteosarcoma at the age of seven. Doctors found a tumor located above her left knee that encompassed 75% of her femur. She immediately started chemotherapy. Read more

When an adolescent is diagnosed with cancer, their future is daunting, not only because of the cancer itself, but also because of the unique aspects of psychological and social development that occur during the teenage years. Read more

The 2013 CureSearch Walk season is underway! Join CureSearch at one of our upcoming Walks as we honor and remember those affected by children's cancer. These very special days will include prizes, music, food, and fun activities for the entire family! For a full list, click here.

CureSearch for Children's Cancer, a member of the Alliance for Childhood Cancer, is pleased to announce that this year's Childhood Cancer Action Day in Washington, DC is scheduled for June 17-18, 2013. Read more

Experience an adventure and help CureSearch by taking the Ultimate Hike challenge! Join CureSearch at one of our 11 upcoming hikes across the country. Each trail will provide a significant challenge no matter the level of hike experience. To find a hike near you, click here.

Saturday, March 9, 2013

Strokes and Chemo

The past week has been very busy ... starting with last Friday.  On my way home from work, I received a message from my sister that mom called and wanted to go to ER.  She was having trouble with her vision.  Since I was right down the street and sis just got home from chemo treatment, I headed over to take care of the situation. 

Got mom to the ER and she was taken back pretty quickly.  She described her symptoms to different nurses who asked her the same questions.  Then a doctor came in for some eye hand motor tests.  Doc ordered an EKG, a chest x-ray and a cat scan.  About 4-1/2 hours later, they admitted her for observation.  We got her settled in her room and ordered dinner (about 9:30), as she hadn't eaten since I picked her up. 

Saturday, they ordered an MRI as the cat scan was inclusive.  The MRI showed that she had a stroke located in the back of her head behind her left ear.  It surprised a lot of us because she did not have any paralysis.  (that's good)  Mom has 100% blockage on one side of her neck and 70% blockage on the other side.  They kept her Sunday and released her Monday afternoon, with a whole list of doctors to follow up with.

During the same time, Christie was dealing with the side effects from the Taxol.  Another infection, slight fever and pain.  Stupid canzer!

Early Detection for Pancreatic Cancer

http://www.forbes.com/sites/bruceupbin/2012/06/18/wait-did-this-15-year-old-from-maryland-just-change-cancer-treatment/

A friend of mine sent this article to me.  I sure do hope this gives a big jump to early detection for pancreatic cancer.  The comments from readers are always interesting.

Thursday, February 28, 2013

My Father-in-law

The one year anniversary of the loss of my father-in-law is upon us.  How did a whole year go by already?  Matt is still trying to deal with the loss and my heart aches for him.    What happens if you die on Feb 29

I heard a message on the radio that said "If you think you are in the land of the living, you got it all wrong.  We are in the land of the dying and it is in heaven where we will live for eternity." Dr Hendricks was married for 66 years and has been celebrated for his many years of service with Moody.  What a legacy ~  I hope Pa is visiting with him now

Dr. Howard Hendricks is With the Lord


February 22, 2013
Dr. Howard Hendricks beloved teacher, speaker and author, passed away on Wednesday, Feb. 20, 2013. Dr. Hendricks was the co-author with his son William of the best-selling books Living By the Book, and As Iron Sharpens Iron.

"Moody Publishers, along with the family and friends of Howard Hendricks, are saddened by the news of his passing," said Greg Thornton, senior vice president, Moody Media. "We will greatly miss Dr. Hendricks, his humor, and especially his tremendous ability to communicate truth through his speaking, teaching and writing. We mourn his loss but rejoice in knowing he’s with our Savior." 
A wonderful tribute has been developed by the Dallas Theological Seminary, which can be viewed here.

Please pray God’s comfort on Howard’s wife Jeanne, four children including son and co-author Bill Hendricks, six grandchildren and two great grandchildren


Monday, February 25, 2013

Lymphedema After Breast Cancer Surgery


Denise shared a very interesting post regarding Lymphedema http://denise4health.wordpress.com/2013/02/11/learning-to-live-with-lymphedema/#comments

So, I’m on the path of learning what I can about it.  This is from WebMD.com

 
Save This Article For Later
{fontSizerContenLymphadema is related to the functioning of the lymphatic system, which helps the immune system fight off infection and clears debris from the body. Here's how the lymphatic system works:

·       Excess fluid is collected from the space between tissues in the body and moves through the lymph vessels. The fluid (now called lymph) isn't pumped through the body like blood, but instead is "pushed" through the lymph system as the vessels are compressed by surrounding muscles.

·       Filters called lymph nodes remove certain harmful substances from the lymph fluid, such as bacteria and debris. The fluid from most tissues or organs is filtered through one or more lymph nodes before draining into the bloodstream.

What Is Lymphedema?

Lymphedema is an abnormal buildup of fluid that causes swelling, most often in the arms or legs. The condition develops when lymph vessels or lymph nodes are missing, impaired, damaged, or removed.
There are two types of lymphedema: primary and secondary.
Primary lymphedema is rare and is caused by the absence of, or abnormalities in, certain lymph vessels at birth.

Secondary lymphedema occurs as a result of a blockage or interruption that alters the flow of lymph through the lymphatic system. It may develop from an infection, cancer, surgery, scar tissue formation, trauma, deep vein thrombosis (a blood clot in a vein), radiation, or other cancer treatment.

Thursday, February 14, 2013

Results From The Family Doctor

Yesterday I had my follow-up visit with my family doctor to discuss the blood work he ordered.  He was so pleased with the results that I could hang it on my refrigerator! Well, I won't go that far ....

The iron, vit D, vit B12, all good - no issues with thyroid, lupus, rheumatoid arthritis, and a bunch of other items from the panel were good.  The only thing I need to work on is my cholesterol.  Not bad enough to control with medicine, but I need to make changes to my diet, get more exercise. 
 
Everything all of us need to do.


The changes he made in my blood pressure meds seems to be doing the trick.  Not getting those crazy dizzy spells, flashes and stuff now.  Still adjusting the depression meds.  It's hard for most people to tell that I am on that stuff because I don't show most people that side.  I don't even know if I'm really truly depressed (if that makes sense) because I've worked through a lot of issues the past 13 months.  My sadness is what he called "situational".  That is true. 

I brought up the issue of the lump at the back of my knee.  Had it since last November.  He is convinced that it is ligament related. An MRI would tell.  He recommended anti-inflammatory and overall gentle exercise.

Follow-up in two months ~

Sunday, February 10, 2013

Update on Christie

I would like to request prayer for my sister, Christie.  She spent a long time in ER Saturday night and today is no better.  This evening, it was difficult to gauge whether or not to get her back in ER again. 

She is fighting an infection and has a slight fever.  However, those slight fevers are just brimming below the mark 100.9 ...... the mark of when we are told to seek medical attention. 

Their experience with the ER on 2 other occasions were horrible.  I can't believe that as a cancer patient, she had to stay in the ER where all the germs are!  That is NOT what our oncologist told us.  We are to be whisked straight up to the oncology floor!

Please pray for healing, comfort and that the fever and infection are controlled.

Thank you ~

Monday, February 4, 2013

The Friendly Family Doctor

I have finally made an appointment to see my family doctor ~ scheduled for tomorrow.  I have only seen him once since my diagnosis of bc.  I thought it would be a good idea to have him look at my blood count to see if I'm lacking in iron or any other deficiencies.  Trust me, I'm tired of doctors, tests and needles. But that's just it, I'm tired. 

So, I plan to start with a blood work up and then discuss all the aches and pains I have been experiencing before cancer and after.  Starting from my feet to the top of my head.  Sound radical?  Nope. Not really. 

Remember when I got the MRI on my back and Doc said I had a pinched nerve and some degenerative stuff going on?  Well, nothing as been done for that and I can't stand long enough to wash my dishes or shop the grocery store without tremendous pain.

Remember the pain behind my knee and pea sized bump?  Gonna ask about that too.

I had a terrible episode the other night that brought me to my knees.  My blood pressure was sky high, so I'll be talking to him about my meds........ALL my meds.  Hope to discontinue what my body doesn't need anymore.

So, that's the short list! 

In other news, my Uncle Bobby went home to be with the Lord yesterday.  My heart breaks for my Aunt and my cousins.  Rest in Peace ~

Tuesday, January 29, 2013

I want my brain back!

 
I'm extremely curious about http://www.lumosity.com/


I want to get back in the game!  back in life! back in work! 
 
I want my brain back!


Got this from my new found blogging friend Denise http://denise4health.wordpress.com/


I'll keep you posted :)

Sunday, January 27, 2013

Chronic Fatigue

Have you ever been sick and tired of being sick and tired?  Have you ever wondered if people are sick and tired of you complaining about being sick and tired? 
 
Well, that's me in a nutshell. 

You would think that after declaring that I'm "cancer-free", it would all be "okay" by now.  After all, the treatments are done.

And I'm still not feeling 100% and I'm still really, really tired.

There are probably things that I should be doing to help myself through this process of recovery. 

Eating better
Exercising
Do I need more iron?
I could use some sunshine for sure
Less stress?

What the heck is WRONG WITH ME?

Monday, January 21, 2013

Introduction to Breast Cancer

Article from Health Monitor Fall 2012

Learning that you have breast cancer can, quite literally, stop you in your tracks. You may feel frozen in time, replaying over and over again in your mind the moment your doctor told you the news. It's normal to feel a wide range of emotions—fear, shock, depression, anger and even guilt.

Slow down, take a moment and breathe. The emotions you are feeling are completely understandable. And if you are feeling nothing, that's OK, too. Oftentimes, when a woman hears the diagnosis "breast cancer," she goes temporarily numb.

Take comfort, though, in knowing that, as of 2010, there are more than 2.5 million breast cancer survivors in the U.S. Experts report that the death rate from breast cancer has been decreasing since 1991, due to public awareness, earlier detection and advances in treatment.

The truth is, there is nothing fair about breast cancer. But you can find plenty of help and reasons for hope. Turn to your family and friends. Choose a healthcare team you trust. Prepare for a battle and be strong.

http://www.healthmonitor.com/womens-health/breast-cancer/living-breast-cancer

Names of Survivors

My sister has a wonderful idea for a project.  She is asking for a list of names of breast cancer survivors.  I got side tracked, like I normally do, and read a few of these googled articles .....

Pink Warriors

Kate Jackson

Celebrities - Breast Cancer

Wednesday, January 16, 2013

Simplifying My Life

January 15, 2013 was my appointment with Doc Esther, my medical oncologist.   This was to be my official parting of the ways.

Product DetailsI was reading a book as I waited to be called in.  Something not cancer related.  The nurse took me to one of the exam rooms to take my vitals.  As she did so, she asked me what the numbers 316 meant that was written on my bracelet. 

"It's a Bible verse."
"Can you tell me what it says?" she asked.
"Are you sure?" She said she was.

I then spoke the words ~

John 3:16

New King James Version (NKJV)
16 For God so loved the world that He gave His only begotten Son, that whoever believes in Him should not perish but have everlasting life.

Mind you, this was the first time a stranger asked me point blank about the bible or anything related to God.  My heart was overflowing to be able to say that out loud to a person who actually gave me permission to tell them words from the bible.

Then, she was gone .... and in walked Doc Esther.  She booted up my medical records on the computer and said

I'm going to simplify your life

She said my team of doctors collaborated and decided that patients only needed to get the final clearance from one of them (not all 3).  She asked me if I had appointments to follow up with my surgeon and I said yes, March 5.  And my radiologist?  I said yes, March 6. 

"Cancel them, you don't need to see them."

After the exam, I followed her to the nurses station as she wrote a script for me and instructions for my next visit in 3 months.

I gave her a hug and said "thank you for saving my life" and she said

I was just the recipe maker

As I left, I decided to walk thru the treatment area to find some angel nurses .... I found nurses Karen and Regina and got some heartfelt hugs.  I came to a stop in the waiting room as a woman caught my attention.  She was wearing a hat and holding her husband's hand.  I laid my things on the chair near them and put my coat on.  I wished I could just sit down and talk to her. Instead, I said "I just finished a year of treatment.  I'm all done!" She smiled and said "congratulations".  I replied, "There is hope."

My journey is done ..... now, I just need to focus on gaining my strength back and getting my body cleansed of all the chemo drugs.  This will take some time, I'm sure.  Isn't that a thought? 

Time is what I now have back.


Thanks to my heavenly maker and my recipe maker ~

Monday, January 7, 2013

Unapologetic

I've spent the last week concerned about my sister, Christie.  Now, I just got my hair back and she is gonna turn it gray! 

We are all keeping a sharp eye on missy now!

I think this was a lesson to all of us, but especially for her.  Each of us knows our own bodies best and when it is feeling bad, especially chemo patients, we got to recognize it for what it is and get help. 

Unapologetic
 
 
For patients everywhere:
 
  • Are you worried about being a nuisance?
  • Think you are calling the doctor's office too many times?
  • Feeling like a hypochondriac?
  • Don't want to rock the boat?
 
 
 
Get over it!
Call the doctor!!
 
You have my permission ....
ok, ok, give yourself permission!
 


Friday, January 4, 2013

Prayers for Christie

Christie was admitted to the hospital yesterday and will stay in for another night.  She is getting a much needed dose of hydration and TLC.